This week during an election campaign leaders debate a mum from Brisbane stood up and asked a question about why her sons NDIS budget was being cut by 30%.

Instead of Scott saying he didn’t know, or he would ask the current NDIS minister, he said the following.

“Jenny (his wife) and I have been blessed, we’ve got two children that don’t — that haven’t had to go through that,” he said.

“And so, for parents with children who are disabled, I can only try and understand your aspirations for those children.”

I cannot sit here typing away on my keyboard and say that being Autistic has sat comfortably with me for the past 6 years because that would be a lie.

I don’t wake up everyday feeling “blessed” that I have a disability, I don’t break into a song and dance routine about how wonderful it is or how exciting I feel knowing that I have a disability.

There are certain days when it does all become too much and I do feel like I am a burden to my mum or others around me, other days I don’t give it a second thought.

It’s an overwhelming experience being Autistic, if people want to know the truth well then there it is.

I wrote a post in February about what it’s like for me as an Autistic person in the workplace.

I even wrote a post about what its like to be Autistic

My brain is like a Catherine Wheel constantly spinning and spinning and I have no control over that, or the way I communicate with people.

I am also living in fear of what my day will bring, who I’ll encounter, and I am also continually asking myself questions.

Like will my routine change today?

Will I get an email reply or a text message reply from that person?

Will I have to maintain eye contact?

But back to the comment that Scott made.

Scott’s comments speaks volumes about how he perceives people with a disability. It also can be taken as a very ableist comment and one that seeks to be dismissive and disempower people with a disability.

I certainly think that 40 years ago if I had been diagnosed sooner as being Autistic then it wouldn’t have been such a long hard slog to get to where we are.

I certainly didn’t wish to be Autistic, if I would’ve known then day to day obstacles that I would face from communication difficulties to the sensory onslaught.

I know I wouldn’t have been wishing that upon myself.

I know I don’t appreciate the fatigue, the shutdowns, the meltdowns, the sensory overloads.

Its not exactly a blessing being Autistic.

I battle with it each and every day.

I raged against it at the beginning when I was first diagnosed.

I didn’t want to have a disability.

I didn’t want to face society’s prejudice.

I didn’t want to see that patronising sorry look that non-disabled people give us when they find out.

I lived in fear of telling strangers, or people outside or in some cases inside my family.

Each day presents itself with a new set of struggles, obstacles, situations, and I have to find people to help me with those solutions.

And whilst the past 46-years haven’t been a joy in terms of being diagnosed with Autism and then struggling to come to terms with it there are some positives that have come along because I have a disability.

So, now let’s turn this around here to some degree.

I do feel blessed that I am able to write about what it’s like to be Autistic in my blogs each week and the fact that I have 296 posts.

I do feel blessed that I am able to use my website as I wanted to help educate people on what life is really like living with Autism.

I do feel blessed that I am the disability affairs reporter with the ABC and that I am able to tell other disabled people’s stories about what life is like for them living as a disabled person.

I do feel blessed that I have my screenwriting mentor and that I am able to work on my passion which is screenwriting. Although her constant flip flopping is challenging!!

I do feel blessed that whilst living with Autism is very challenging, exhausting and sometimes painful, Autistic people like myself have a beautiful and unique perspective of the world.


As always, I can also be found on Twitter:@AutisticNickAU and on the Official Autistic Nick Facebook Page

Thank you for reading and I will see you next time for more thoughts from across the spectrum.


  1. Great post Nick. Morrison’s ill phrased words have certainly swept up a storm, but on the bright side it has created opportunities to talk about the negative perceptions of disability. All lives are a mixture of blessing and difficulties. The biggest disappointment is that it took Morrison so long to apologise, and I still wonder whether he really gets it.


Leave a Reply

Please log in using one of these methods to post your comment: Logo

You are commenting using your account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.